For the few weeks leading up to her final ride
to the hospital, Stephanie was feeling poorly and not eating much. And that certainly wasn't unprecedented. Since the kidney diagnosis seven or eight years
earlier, she'd occasionally had days or weeks when she'd felt poorly and not
eaten much, but always she eventually started feeling better, or made a doctor's
appointment. She didn't seem any sicker those last few weeks than she'd
sometimes seemed in the past, but it lasted longer than it usually had.
Either three times, or maybe four times during those weeks, I suggested that she see a doctor. Each suggestion was a violation of our rules, and she got cranky and told me not
to suggest it again. A few days later I suggested it again, and she got cranky
again. In hindsight it's obvious, of course, that I should've insisted and
started an argument and raised my voice and never relented. I should've called the
doctor's office and made an appointment for her myself, and then demanded that
she go, but I didn't do any of that.
Here's the way Stephanie said it, several years before
her death: "We can talk about anything, you and I, including my medical
issues, but I need my days off from the medical crap. It's not fair talking
about kidneys and dialysis and all the related trauma and drama all the time.
If we're talking about my medical issues every day, then I've
become my medical issues and it's swallowed my life, and we're not going
to let that happen. So let me make the decisions, let me be me, and we'll talk about it on days when I
have a doctor's appointment, since those days are ruined already. But not on other
days."
And that was our deal. We both went to all her medical
appointments, and we both engaged with the doctor or nurse, offering up facts
or asking and answering questions. She wanted my input before and during every appointment, and
my thoughts afterwards, wide open and with no limits. When the post-appointment conversation was over, though, it was
over, and she didn't want to discuss her medical matters until her next
appointment.
I
rarely violated those rules, by talking about medical stuff on non-medical days. And everything always worked out fine, until that one time
when it didn't. That time when Stephanie died.
There isn't an hour that goes by (at least while
I'm awake) when I don't regret not crossing the line and nagging her more to
see a doctor in the last weeks of her life. I'm always wondering whether that
would have been the difference, whether she'd still be with me, and I'm pretty
sure the answer is yes.
I try not to type it too much here on the website, because there isn't much to say about this particular and painful topic that I haven't said already. This entire post is a rerun, isn't it? I've typed all of this before.
And I try not to kick myself too much, because Stephanie once said, "If I should've seen a doctor but I postponed it too long, if I end up hospitalized or worse, well that's on me, not on you. It's my decision when to make an appointment."
The regret, though, is always on my mind, or not far from my mind.
I try not to type it too much here on the website, because there isn't much to say about this particular and painful topic that I haven't said already. This entire post is a rerun, isn't it? I've typed all of this before.
And I try not to kick myself too much, because Stephanie once said, "If I should've seen a doctor but I postponed it too long, if I end up hospitalized or worse, well that's on me, not on you. It's my decision when to make an appointment."
The regret, though, is always on my mind, or not far from my mind.